The MAGIC Foundation (non-profit)

The MAGIC Foundation (non-profit)
The world's largest organization for growth related disorders. The MAGIC Foundation is a national non-profit organization providing support for thousands of families whose children are affected with chronic and/or critical medical problems interrupting their growth (height). Major Aspects of Growth In Children (MAGIC) is made up of 25,000+ families. We- the parents of MAGIC, fought to find answers for our children's lack of growth. It was not an easy road. Our children were finally diagnosed with growth hormone deficiency and a variety of other growth disorders. We are passionate about getting information "out there" for other parents who are concerned about their children. Call us at (708) 383-0808 or email ContactUs@magicfoundation.org Notes from Jamie Harvey, Co-Founder RUNNING 155 MILES IN THE OUTBACK DESERT FOR MAGIC! Please help this amazing man! 1. IMPORTANT- Go to his website http://www.luciandgeorge.com. Click on the Australia Blog section in the middle of his home page to find George's BLOG (writing about his training and experiences). At the bottom of the page of posts is a Comment link. Here you can click to post a comment to him. Do it right now while you are at your computer-it will only take a minute. He says that hearing from families helps him drive through the pain etc. 2. Send out an email request to friends, co-workers, family, etc. to donate even $5 or whatever they can help with. He will be hurt and disappointed to fall so far short of his $100,000 goal upon his return and we only have 4 days to raise $20,000! HELP!!!! It will take 200 people donating $100 each or 1,000 people donating $20 each to make his dream come true. He is giving it everything he has, and it is our turn to back him up! This will not happen if you fail to act on this appeal! It is going to take an effort like the one we all made to stop the bill in Congress last year. George has a Cause page on Facebook if you want to go look at it. However, the Luci & George site is the most up to date one and the place he looks at each day after running.
Our Official Site The MAGIC Foundation Visit our website for information on the illnesses which greatly impact children's growth and the treatments available. Find parents and grandparents of children just like yours. You are not alone. MAGIC is here for you. Primary Disorders Links For your convenience we have listed links to the other divisions here. By clicking on a title, you will be forwarded to the informational brochure(s) section for that disorder. Central Precocious Puberty Chronic Renal Insufficiency Congenital Adrenal Hyperplasia Constitutional Growth Delay Disorders of Sexual Development Failure to Thrive Growth Hormone Deficiency in Children Growth Hormone Deficiency in Adults Idiopathic Short Stature Insulin-like Growth Factor Deficiency/ IGF-1 Intrauterine Growth Retardation McCune-Albright Syndrome/ Fibrous Dysplasia Panhypopituitarism/ Tumors (Other) Rare Disorders Russell-Silver Syndrome Small-for-Gestational Age Septo-Optic Dysplasia Optic Nerve Hypoplasia Thyroid Disorders Turner Syndrome Helpful Links Visit MAGIC on Helium and write for a cause. Local Parent Education Programs MAGIC's Adult GHD Convention MAGIC's Higher Learning Scholarships Testimonials The MAGIC Foundation hosts the most comprehensive convention in America. Hear what attendees, parents and the speakers have to say. Studies Recruiting Insulin-like Growth Factor 1 Clinical Trials Optic Nerve Hypoplasia Two studies in Panhypopituitarism Small for Gestational Age GH treatment of scoliosis in Prater-Willi Syndrome Central Precocious Puberty Insert code CPP NCT00635817 in the "Search for Clinical Trials" box. or contact Abbott Global Medical Services (800-633-9110) for information on how to reach the study investigator in your area. Get in the Sphere Sphere: Related Content Insurance & Politics Insurance and Political Changes 1. Insurance companies want to mandate Insurance. 2. Generic drugs coming? Scary! These drugs do not have to be bio- identical! They can be follow on's or other fancy terms...but not exactly like the drugs we have...no clinical trials are needed for these drugs...are they playing with our children's lives? 3. 04/09/09 -Johns Hopkins Medicine has adopted a new policy that significantly limits interactions with industry while ensuring effective, principled and appropriate partnerships with drug and medical device makers.	Our Location Suggested Reading Why is early diagnosis important for children who fail to grow? Find out why The MAGIC Foundation is determined to raise awareness of children's growth. Diagnosing failure to thrive (FTT) in infants What is FTT? How is it diagnosed? Share your Knowledge & Experience Helium and MAGIC are looking for a few good...writers. Share your medical knowledge or your experience by providing details, facts and information. We need writers on the following topics!!! (Email jamie@magicfoundation.org if you need help!) Symptoms and treatment of Insulin-like Growth Factor (IGF-1) Deficiency Symptoms and treatment of Septo-Optic Dysplasia Symptoms and treatment of Idiopathic Short Stature Diagnosing Growth Hormone Deficiency in children What are the benchmarks in diagnosing GHD? Effects of pediatrician's failure to refer children to endocrinologists Why is timing critical when referring pediatric patients? How small is the window of opportunity when treating growth disorders? What is Optic Nerve Hypoplasia? What is McCune-Albright Syndrome? Why getting accurate measurements is critical to diagnosing growth disorders Which measurements do you need after height and weight? Small for gestational age: Symptoms and treatment How precocious puberty affected our entire family My child is not growing normally What did you do when the doctor was not listening to you? The "Don't Worry" Diagnosis What do you do when the doctor tells you nothing is wrong, but you know something is? One Hormone, Two Hormones and more! Coping with multiple hormone deficiencies Living a GREAT Life! Testimonies about overcoming genetic challenges Living outside the bubble Testimonies about living large with brittle bones Live for the Moment Compliments of Jamie!
Comments (1 to 2 of 2) Ann Marie Dwyer Jun 08, 09 at 01:55 PM Need to be giving props to Jamie! She is the heartbeat of MAGIC and keeps the updates:) Her notes every week keeps families in touch with all things important to growth! Olivia Bredbenner Apr 14, 09 at 10:39 PM Ann marie, You did it again! beautiful and informative site. You touched on everything. Great job!! Enter your comment below: If you are a registered Helium member, you may login and then leave your own comment. Flag Inappropriate Content

Children have a short time to grow and a lifetime to live with the results!(c)

The MAGIC Foundation Vision

Our commitment and vision is, to reduce the emotional and physical trauma caused by growth disorders, resulting in healthier, happier children.

Award Winning Charity

The Independent Charities Seal of Excellence is awarded to Independent Charities of America and Local Independent Charities of America that have, upon rigorous independent review, been able to certify, document, and demonstrate on an annual basis that they meet the highest standards of public accountability, program effectiveness, and cost effectiveness.

These standards include those required by the US Government for inclusion in the Combined Federal Campaign, probably the most exclusive fund drive in the world.

Of the 1,000,000 charities operating in the United States today, it is estimated that fewer than 50,000, or 5 percent, meet or exceed these standards, and, of those, fewer than 2,000 have been awarded this Seal. MAGIC's CFC #10388

Helium Writers Help

Did you know Helium will donate article proceeds to The MAGIC Foundation?

When you write an article, go to My Articles in My Helium. Under "Article Options" choose to donate to The MAGIC Foundation.

MAGIC uses donated money to provide support services for families with chronic and/or critical diseases, syndromes and disorders. Help find bring the MAGIC to families in need.

MAGIC Merchandise

The MAGIC Foundation does not sell anything.

If you would like to help support The MAGIC Foundation, look at some of the tax free gifts available.

Assessing the need for human growth hormone (HGH) in teens

by Ann Marie Dwyer

Human growth hormone (HGH) is the primary treatment for Growth Hormone Deficiency (GHD) in children, especially teens. While media coverage highlighting the use of HGH to gain athletic edge has sensat...More>
1 articles Write Now Write

MAGIC Weather

Live Conditions from Forest Park, IL USA

May 16, 2012, 4:49 PM get more weather

Mostly Sunny

Temperature: 60.7 °F

Humidity: 29 %

Wind Speed: 7 mph E

Rain Today: 0 "

What is Russell-Silver Syndrome?

by Angie Pollock

Russell-Silver syndrome (RSS) is a genetic disorder found in newborns that have an abnormal body asymmetry. Although the characteristics can vary between children, many infants and children that are d...More>
2 articles Write Now Write

Help Make it Happen

Would you donate to The MAGIC Foundation? Every gift is needed.

Have you thought about donating your frequent flier miles? Families need those miles for tickets to medical facilities. Hotel points help families stay together when their children need treatment away from home.

Do you shop at Albertson's? Contact The MAGIC Foundation to have Albertson's donate a portion of your purchase each quarter.

Is there an extra car in your driveway? Donate it to The MAGIC Foundation and get a tax deduction in return!

Visit the Fundraising page to see more ways to donate and make MAGIC happen for special families.

Why getting accurate measurements is critical to diagnosing growth disorders

by Linda L Kinyon

Growth disorders present themselves in a variety of ways. For some children this may mean they grow slower than others while for others it may mean an accelerated rate of growth. Getting an accurate m...More>
1 articles Write Now Write

Need to Fly to get Medical Treatment?

Don't let them suffer because the treatment your children need is hundred of miles away! Learn about medical transportation discount flights or contact a MAGIC family travel agent. Details and contact information is located beneath The MAGIC Foundation convention information.

Was this Zone helpful?

Zone Rating: 45

Click here to subscribe to this Zone

Managed by:

Want to be an editor of this Zone? Contributing editors to this Zone must be approved by the Zone manager. Click Here to request to be an editor. You must be logged in first.

CONNECT WITH US

Write and get published
Share with other writers
Polish your freelancing skills

Join our active writing community

Quality articles from proven freelancers
Exclusive rights, fast turnaround
Brand engagement, business blogging -- our writers do it all

Get custom content today!

INFORMATION

Helium, Inc.

200 Brickstone Square Andover, MA 01810 USA

The MAGIC Foundation (non-profit)

The world's largest organization for growth related disorders.

Notes from Jamie Harvey, Co-Founder

Our Official Site

Primary Disorders Links

Helpful Links

Studies Recruiting

Get in the Sphere

Insurance & Politics

Our Location

Suggested Reading

Share your Knowledge & Experience

Live for the Moment

Comments (1 to 2 of 2)