: About Me

McCune-Albright Syndrome/Fibrous Dysplasia, As explained by a parent. My son was 4 years old and wearing Tigger pajamas when we learned that he has MAS/FD. I couldn't get to the computer fast enough and spent hours and days on the internet. Some of the information that I found was accurate but a lot of the information, even from reputable sources, was just wrong. It's been over 2 years now that I've known about my son's MAS/FD. I consider it something along the lines of a serious chronic illness with a side of disability. I'm still scared, but I know that he probably won't lose his vision ...