Because I was diagnosed with cystic fibrosis (CF) at birth, I'm unable to give an account of what it was like to hear the diagnosis for the first time. I've heard my parents' version of what that was like. I was born on th...read more
First let me say that each person with Cystic Fibrosis is a little different. Some have more lung issues than pancreatic, others have major digestive issues while not having much impact to their lungs, and some have both ...read more
Being a teenager and living with Cystic Fibrosis (CF) in today's society is a daily challenge. I was diagnosed at age 8, at Children's Hospital in Columbus, Ohio. The immediate reaction for me was one of shock. I had never...read more
by Debra Wilson
My daughter, who is now nearly two, was diagnosed with cystic fibrosis at six weeks. The past twenty months or so have been a time of upheaval and distress, with a little terror thrown in occasionally. But they have also...read more
There is no such thing as a typical day in the life of someone with Cystic Fibrosis. There's just not. Every person with Cystic Fibrosis (CF) has a totally and completely different journey than the next. There are things...read more
There are those of us who do not have this dreadful disease but must watch their loved one deal with it, cope with it, and live it! I am a mother of child who succumbed to the deadly hand of Cystic Fibrosis. While "living...read more
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