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"In the morning I wake up and do my treatment, albooteral, eat and take my enzymesh with thickner in my drink. I go school come home and I do nother albooteral treatment. At night watch sheventh heaven when I don chow more treatmentsh. I eat dinner with my family and I gots lots of pills. Like I got enzymesh, a little green pill, an Loradine cause of my dishease. Before I go bed I do nother treatment called Tobi an I go bed. I not think it fair that I got dishease an the reshearchersh not finding a cure. Like it not fair that I got pain an lots of medichinesh and the reshearchersh aren't helping much," Nathaniel said while snot started to drip out of his tiny nose. Last night during our dinner, Nathaniel, my younger brother, proclaimed this statement

Nathaniel, mentally challenged, is fourteen and has Cystic Fibrosis, a life shortening lung disease. It is an inherited disorder that affects the way salt and water move into and out of the body's cells. Thick mucus blocks the small tubes and ducts in the lungs and the digestive system. The lung problem can lead to progressive blockage, infection, and lung damage. Even death can be caused by too much damage while the pancreatic blockage causes poor growth and under nutrition. Sweat glands are also affected, because they make a much saltier sweat then normal.
While reading my mom's book of Cystic Fibrosis, I read that it is impossible to predict how long a single patient would live. It also stated that just a few decades ago, most children with CF died before they were two years old. "By 1995, the average survival had improved to nearly 30 years, with many people surviving into their 30's and 40's."(Orenstein, 1997) But children do still die with CF. Although medical care has advanced through these years, there is still no cure for Cystic Fibrosis.
As Nathaniel coughed he went on with an idea. "I got idea bout thish: when babies born nurshesh give em all Shystic Fibroshish. After that everybody gots it. Then nobody hash to feel like they the only onesh with the problemsh. An when I go out with momma and shnot comesh out of my noshe nobody staresh at me cause they do it too. An we know the reshearchersh not do nothing anywaysh to help ush. Cause my nurse Mrs. Pelt at Scottish Rite tol' me that when she was doin reshearchin all they did was eat bon bonsh an watch tv. Now we won't need'em if everybody gotsh it An that meansh that we not have to give money for their bon bonsh."
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