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specialist that finally gave him an accurate diagnosis of Fetal Alcohol Syndrome. While we finally had a diagnosis nobody seemed able to help us get his behavior under control and his behavior was getting worse. At that time, he was on 7 medications however none were effective. We went back on the internet searching and learning about FASD and found a "severe" behavior clinic, The Marcus Institute, in Atlanta GA. They observed his behaviors and they immediately asked if we would be open to coming to Atlanta to live for a couple of months so he could attend the clinic. It was their observation that his behaviors were something that would not ever get better without extreme intervention. At this point we had no choice; he was getting bigger, stronger and more destructive everyday. After fighting insurance complications, Andrew and I went to Atlanta where he underwent treatment, testing and training for eight weeks.

After two months of hard work the severe behavior clinic was able to decrease his problem behaviors by 96.6% from when we first started the program. The skills we learned are skills we are still using to keep his behavior under control. While we still have bad days, we also now have good days. He is able to stay at school all day now, with the help of a shadow and he is able to play baseball and football with other kids his age and he is happy.

Andrew, as well as most FASD children will never be what others feel is "normal" and that is okay with us because he is now a happy little boy. He is learning to read, and is slowly learning social skills. We had to adjust our expectations as well as learn to think "outside of the box" when we are dealing with him and his problems. We are living a fairly normal life, whatever that is. We are not healed in the traditional sense but we are functioning and making progress. He is now off of 5 of the 7 medications and has really grown physically and emotionally.

Most children with FASD have many issues to face their entire lives. FASD is not a treatable or curable condition that can be fixed with therapy or medication. There are some children who benefit from certain types of medication, but the medications only address some of the symptoms. Permanent brain damage can not be fixed or medicated. Creative behavior management works well most of the time. Children with FASD have processing problems and can not understand cause, effect, or consequences. One of the most important things I have learned from my son is to keep an open mind, a sense of humor, and my faith in God.

Learn more about this author, Kerry Johnson.
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