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Living with Morgellon's disease

by Doreen Martel

Created on: March 30, 2010

Life for those suffering from Morgellon’s Syndrome (a.k.a. Morgellons or Morgellon’s Disease) can be painful. This pain can increase from year to year, especially since no known cause or cure has been found at this time. Until research determines the source of the problem (and until they establish that there actually IS a problem to begin with), Morgellons patients are likely to continue their suffering without relief.



Many of the symptoms associated with Morgellons get progressively worse unless an effective treatment can be found. These treatments vary by patients, as does the level of symptom relief. Some treatments work well for some patients, while the same treatments provide little or no relief for another patient (even if the symptoms are the same, the patient is the same age, and other similar factors are present). Others do not work at all for one patient, but seem to offer effective relief for another patient. The cause of this is not known, but there are absolutely no cures for Morgellons to date, only relief. If patients discontinue medications, the symptoms return, and grow progressively worse.

Skin lesions, rashes, and joint pain (similar to that of fibromyalgia patients) are the most common complaint of Morgellons patients. Although doctors point in a myriad of different directions, many Morgellons patients remain adamant in their certainty that the malady is attributable to Morgellons and not any other (however similar) illness and refuse any treatment relating to the similar disease or sickness.

However, there is very little evidence suggesting that Morgellons is anything other than a purely psychosomatic disease in and of itself. There are many maladies that contain one or more Morgellons symptoms, but, due to the widespread conspiracy theories that are associated with diseases, patients refuse to accept that what they have is not a new, undocumented illness but a simply explained one with easy-to-treat symptoms. What is actually quite likely an allergic reaction becomes a life-threatening bio-terrorism effort. It is quite sad on both sides of the spectrum: sad for patients who suffer needlessly if Morgellons is not real and sad for the same patients if it is real and doctors are not seeking a more effective remedy.

The FDA, AMA, and Centers for Disease Control have neither confirmed nor effectually denied the existence of Morgellons. They have admitted that there are symptoms in some patients that cannot be effectively treated or

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