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How would you change health care if you had the power?

by Mari Trimble

Created on: January 19, 2009

For My Mother

My sister and I told our Mother we would never put her in a nursing home. That's what we told her, my sister and I, without a thought about our own disabilities and the limitations they created or the fact that Mom might eventually need 24-hour care. Although our intentions were courageous there finally came a day that we had to break that promise even though we fought hard for every option we could scrape up.

So what were we so afraid of that a nursing home would be the very last option? The fears were many and unfortunately all too common. The primary ones were lack of quality care and compassion, neglect, bad food, loss of autonomy and deterioration of her mental health. Like almost all grown children faced with this decision we were somewhat optimistic at first, thinking if we looked hard enough we would be able to find that one nursing home that really cared, and, they would take Medicaid.

Even though I work in the disability field with experience to the contrary, my hopes were high. We carefully screened three or four skilled nursing facilities and included Mother in all the decision-making. By the time two months had passed we were transferring her into a third one. The nursing homes changed but the problems remained.

This process was wearing on Mother's normally strong, courageous and happy attitude. I can tell you from experience that even the most aware and extrovert personalities will succumb to the daily chipping away of their self esteem until all that remains is the defeated complaining, and most important, complacent, victim. That is what happened to our Mother and in the end fear resided within her and she begged us not to "stir up" trouble as they make her pay for it later with neglect.

There are circumstances that I feel give way to a propensity for corruption of nursing home services. I have listed these below.

A lot of registered nurses, because of inexperience or just plain "burn-out", are unable to see past the documents they are required to complete to the true priorities in caring for their floor safety, hydration, and attention to serious medical problems, adequate nutrition and cleanliness. Mainly for cost savings, nurse's aides fill these important roles while the nurse does the exhausting paperwork. My Mother and many others on her floor seldom saw a nurse even though C-Diff infection continually ran rampant throughout the nursing home.
Lack of supervisory staff especially on evening and all night shifts allows thievery and


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