by Ms. K

Created on: December 23, 2008   Last Updated: July 14, 2010

Lymphedema results from malformed or damaged lymphatic vessels. Because of this damage, lymphatic fluid pools in the area of damage and causes severe swelling. Unlike blood, lymphatic fluids are not pushed through the body by the heart. Most lymphedema occurs in the arms or legs, though some people suffer from genital lymphedema. It is incurable. It is controllable but only to a degree. It affects more women than men.

It is NOT edema. That is, it is not brought on by water retention. If you have been trying to alleviate swelling in your arms or legs by taking diuretics and it isn't working, ask your doctor if it could be lymphedema.

The Symptoms

* Swelling in the limbs

* Arm(s) or leg(s) may feel heavy and tight

* Pain

* Fatigue

As it progresses untreated, the skin eventually hardens and may form blisters that seep. Early treatment is essential for avoiding permanent damage to your body.

Two Types of Lymphedema

1. Primary lymphedema is congenital and may occur from birth or "lay in wait" and rear its ugly head thirty years later (tarda).

2. Secondary lymphedema is caused by injury, infection or radiation. Cancer patients who have undergone radiation treatments may receive a diagnosis of lymphedema as an unwelcome reminder of their battle with cancer.

The medical complications resulting from lymphedema include a greater risk for lymphatic cancers and serious infections. The psychological effects of lymphedema include lowered self-esteem, social anxiety and depression.

In spite of the millions of people who are suffering from lymphedema, it is still relatively unheard of and most doctors don't have a clue how to treat a patient with the condition. What is more, getting diagnosed can be a long process unless your doctor recognizes its possibility due to cancer treatments.

I went through four doctors before I was diagnosed because I ended up in the hospital with a massive leg infection from a tiny scratch on my big toe. That is when I was diagnosed with "lymphedema tarda" primary lymphedema that shows up in adulthood.

Daily "controlling" of this affliction consists of:

Lymphatic massage

This is to be done in a particular way as typical massage uses too much pressure which can damage lymph vessels even further. There is a technique to lymphatic massage that can only be learned by going to a therapist who specializes in lymphedema. My primary lymphedema is in my legs and feet. The process of massage is long. One must "open" the lymph drainage areas and then use

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