by Jacqueline Skubal

Created on: July 02, 2008

Since May 23, 1992 we have been on a journey for answers as to how to help our daughter recover from her Floppy Baby Syndrome diagnosis. The reasons we found for this diagnosis were not the ones we expected. This recovery road we have been on for the past 16 years reads like a mystery novel.

After Chloe's birth we had concerns regarding the causes for her Floppy Baby Syndrome. Floppy Baby Syndrome means she had low tone in her muscles and she felt like a rag doll when held. We went to two specialists who were unable to explain her rapid growth and low muscle tone.

Chloe was in physical therapy which helped her finally walk at two years old. Her physical therapist said that she seemed to will herself to walk. Chloe always showed a determination to accomplish things if she believed she could. She also did that with occupational therapy, speech therapy and music therapy. We always rewarded good behavior and worked on the negative behavior through educating her as to what behavior someone her age needed to show.

We began to seek out medical answers so we took her to an allergist since it was an issue in both sides of our family. Chloe saw her first allergist at age 3 years old and the findings showed severe allergies to a variety of mold and other environmental pollens. She began to receive weekly allergy shots and medications which helped but did not cure the problem. At age 5 she had a 95% throat closure and needed her tonsils removed. In June of that year, she was diagnosed with asthma and received medication for that. When she was about 7 years old we took her to see an environmental allergist and uncovered food allergies. She is allergic to corn, cocoa, and yeast to name a few. We developed a diet omitting what she was allergic to which was hard because corn, corn-based ingredients, and derivatives are hidden in everything.
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To recover from her brain dysfunction and learning disabilities Doctors suggest to do brain exercises, to coordinate the arms and legs. This is achieved by working with school work, music and swimming till she takes over it and does the task independently. We found at the start it could take 6 months before she could do the task independently and now she may take over the project within the session. She also understood the written word better than spoken at first; but now she even takes direction verbally equally as well. Chloe learns by writing the information first then she is able to say it from memory. This would be personal information,

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