by Valerie Preston

Created on: May 26, 2008   Last Updated: June 13, 2008

Being a retired Coordinator of Services for Children with Special needs in the State of Georgia, I find there are so many things I want to tell parents, that I could write a book about it. This will be a brief synopsis to give you some ideas to meet your child's needs for activities, therapies, equipment, socialization, and education. I encourage that you do not look at state-run programs as welfare. Just as your taxes pay for the roads you drive on, your taxes ensure all children receive these benefits. One other piece of wisdom I'd like to share is to "empower yourself". Knowledge is power. Believe me, you have lots of power to ensure that your child is getting all he needs.

Your child, as he ages, will have individualized and specific needs, which can met in many ways. It starts, of course, with your Pediatrician, who will offer a diagnosis. Based on that, you may be able to get Social Security benefits and Medicaid, or it's equivalent, for your child. If you are above income for these programs, pursue a Medicaid Deeming Waiver through your Health Department, a fact which even many professionals don't know.

*If your child is under age 3, or older in some states, that child is entitled to an assessment of all 5 areas of development, free of charge, and will possibly be eligible for a wealth of free services, plus you will have a worker to keep you informed of resources and to assist you in planning ahead for school, which can begin at age 3.

*If your child is enrolled in school, he/she should have had all needed assessments initially and annually and an IEP should be in place. If not, look into this. Expect therapies to be based on educational need. Your child may need supplemental therapies from other providers after starting school. During the school years, your child has a right to socialization activities with other children, even when very young. Be sure that the IEP covers this as well as therapies. Remember you have a right to call for a new meeting if you are not happy with the IEP.

*If your child is ready to graduate from high school, and has an IEP, vocational instruction should be planned. Insist on it.

*If your child is an adult and is unable to work, investigate the state-run adult day programs. In my experience most adults of special needs love the activities.

As an educated parent, you will probably find yourself scouring the Internet for information on your child's diagnosis more than anything else. This is commendable, but research resources and programs as well. Every state has the programs and the lending libraries, every state has advocacy agencies to help you if you encounter snags, especially while your child is in school. The Internet also offers on-line circles and other ways for parents to share. Additionally, know your rights. Empower yourself, accept what is available, and use the knowledge to advocate for your child. You will be glad you did.

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