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Tips for parents raising children with special needs

by Lauren Hale

Created on: May 26, 2008   Last Updated: June 13, 2008

Being the parent of a child with special needs can be intimidating and exhausting. Parenting in this situation requires you to be active and present. Here are a few tips to help you get yourself and your child the care you need.

The very first thing to do is trust your instincts. If you feel something is not right do not be afraid to get a second, third, fourth opinion. You are your child's best advocate and must be prepared to fight for his or her care.

Then locate a support group for your child's condition. Most groups have websites that are easily located through Internet search engines. Your local hospital may also have information about these groups. A support group will provide access to other parents and families who have navigated the route you are on and know where to turn for help and information. You may even find additional information regarding doctors in your area.

Research, research, research. The best way to advocate for your family is to understand what you are facing. The public library and the Internet are at your disposal. Use them. Ask questions when doctors talk with you. A good doctor will the time to explain in detail what is going on with your child. If your physician does not do this, consider finding one who will. You should be part of the care team and not on the sidelines watching helplessly.

Check into your state's Early Intervention Program. Many of these programs provide in-home therapy and are income sensitive to cost participation. The therapies provided depend on your child's specific condition, needs, and abilities. The added bonus to Early Intervention involvement is that they will often assist with the transition to the public school system once the child is old enough. If your child is already old enough, you'll want to check with the local school system to find out what options are available and how to access them.

Last but not least, do not forget about yourself. As the parent of a special needs child it can be easy to overlook your own needs. Even if it's a cup of tea or hot cocoa while reading your favorite magazine or website, take at least fifteen to thirty minutes a day for yourself. You will find yourself better able to tackle the day's challenges if you remember to care for yourself as well. Do not be ashamed to seek therapy if you are having difficulties dealing with your child's needs. There are on-line therapists available if time and transportation are an issue.

While challenging indeed, parenting a child with special needs can also be rewarding. Not one milestone will pass by without being cherished. Small things such as drinking through a straw, a first word, or the first time your child walks are even more meaningful to us because we have been fighting for instead of waiting for this achievement. Never forget this - special children need special parents.

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